JMIR Infodemiology. 2025 Jun 12;5:e68469. doi: 10.2196/68469.
ABSTRACT
BACKGROUND: Polycystic ovary syndrome (PCOS) is a common endocrinopathy among women that requires self-management to improve mental and physical health outcomes and reduce risk of comorbidity. Digital technology has rapidly emerged as a valuable self-management tool for people with chronic health conditions. However, little is known about the digital technology available for and used by women with PCOS. .
OBJECTIVE: The purpose of this scoping review was to identify what is known about digital technology currently available and used by women with PCOS for PCOS-specific knowledge, self-management, or social support.
METHODS: The databases PubMed, Embase, CINAHL, and Compendex were searched using Medical Subject Headings terms for PCOS, digital technology, health knowledge, self-management, and social support. Inclusion criteria were full-text, peer-reviewed publications of primary research from 2010 to 2025 in English about digital technology used for PCOS-specific knowledge, self-management, or social support by women aged 18 years and older with PCOS. Exclusion criteria were articles about pediatric populations and digital technology used for intervention recruitment or by health care providers to diagnose or treat patients.
RESULTS: In total, 34 full-text articles met the inclusion criteria. Given the scope of digital technology, eligible studies were grouped into 7 domains: mobile apps (n=14), internet-based programs (eg, Google; n=6), social media (n=6), SMS text message (n=2), machine learning (n=2), artificial intelligence (eg, ChatGPT [OpenAI]; n=3), and web-based intervention platforms (n=1). Findings highlighted participants’ varied perceptions of technology usefulness based on reliability of health care information, application features, accuracy of PCOS or fertility prediction, social group engagement, user-friendly interfaces, cultural sensitivity, and accessibility.
CONCLUSIONS: There is potential for digital technology to transform PCOS self-management, but further design and development are needed to optimize the technologies for women with PCOS. Future research should focus on including end users during the design phase of digital technology, refining predictive models, improving app inclusivity, conducting frequent reliability testing, and enhancing user engagement and support via additional features to promote more comprehensive self-management of PCOS. .
PMID:40505084 | DOI:10.2196/68469
