JMIR Aging. 2022 Sep 22. doi: 10.2196/40357. Online ahead of print.
BACKGROUND: Care partners of people living with dementia may benefit from online education. We developed iGeriCare, an award-winning internet-based platform with 12 multimedia e-learning lessons about dementia.
OBJECTIVE: Our objective was to evaluate users’ perceptions of impact.
METHODS: From March 17, 2021-May 16, 2022, data were collected upon lesson completion. We used the content-validated Information Assessment Method for patients and the public (IAM4all) adapted for dementia care partners. The IAM4all questionnaire assesses outcomes of online consumer health information. Responses were collected using SurveyMonkey and data was analyzed using IBM SPSS Statistics (v.28).
RESULTS: 409 responses were collected, with 95% of survey respondents completing the survey. 179 of 409 (43.8%) identified as a family or friend care partner, and 84 of 409 (20.5%) as an individual concerned they may have mild cognitive impairment (MCI) or dementia. 380 of 409 (92.9%) identified the lesson as relevant or very relevant, and 403 of 409 (98.5%) understood the lesson well or very well. Over half of respondents felt they were motivated to learn more, taught something new, or validated in what they do, while some felt reassured or that the lesson refreshed their memory. 401 of 409 (98.0%) said they would use the information; in particular, to better understand something, discuss the information with someone else, do things differently, or do something.
CONCLUSIONS: Users identified iGeriCare as relevant, beneficial, and that they would use the information. To our knowledge, this is the first time the IAM4all has been used to assess patient and caregiver feedback on internet-based dementia education resources. A randomized controlled trial to study feasibility and impact on caregiver knowledge, self-efficacy, and burden is in progress.