Stud Health Technol Inform. 2026 May 7;335:153-154. doi: 10.3233/SHTI260074.
ABSTRACT
Recruiting patients for medical research requires a balance between ethical transparency and practical feasibility. We examined a two-stage re-consenting process for patients in the context of biobanks, capturing trends in patient engagement and preferences regarding future data use. Participation declined mainly at the opt-in stage, highlighting early procedural barriers, while among consenting, most participants allowed broad secondary use of their data without additional recontacting. In general, the results obtained support a transparent opt-out solution for data donation and secondary use of health data.
PMID:42119110 | DOI:10.3233/SHTI260074
