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Survey of Lesbian, Gay, Bisexual, Transgender, and Queer Parents’ Experiences Accessing Health Care for their Children With Developmental Disabilities

J Pediatr Health Care. 2023 Mar 11:S0891-5245(22)00340-6. doi: 10.1016/j.pedhc.2022.11.008. Online ahead of print.


INTRODUCTION: This study explored the impact of health care (HC) bias and discrimination on lesbian, gay, bisexual, transgender, and queer (LGBTQ) parents and their children with developmental disabilities.

METHOD: We conducted a national online survey of LGBTQ parents of children with developmental disabilities using social media and professional networks. Descriptive statistics were compiled. Open-ended responses were coded using inductive and deductive approaches.

RESULTS: Thirty-seven parents completed the survey. Most participants identified as highly educated, White, lesbian or queer, cisgender women and reported positive experiences. Some reported bias and discrimination, including heterosexist forms, LGBTQ disclosure challenges, and, because of their LGBTQ identity, feeling mistreated by their children’s providers or being refused needed HC for their child.

DISCUSSION: This study advances knowledge around LGBTQ parents’ experiences of bias and discrimination while accessing children’s HC. Findings highlight the need for additional research, policy change, and workforce development to improve HC for LGBTQ families.

PMID:36914456 | DOI:10.1016/j.pedhc.2022.11.008

By Nevin Manimala

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